Things have been going pretty well but we have had a few bumps in the road. That is to be expected. The good news/bad news is that Paul still has his catheter in. There was some confusion about that between the two surgeons but the head guy said leave it in and let him heal. As you may know, there is some risk of infection with leaving a catheter in. The good news is with all of his little helpers watching his every move, they were able to see something in the urine before he actually spiked a fever and get him on Cipro right away. So while yes, he had an infection, it was kicked almost before it started.
Today Paul was out of the bed and outside a couple of times today. They have this really cool lift to get him out of bed which kind of takes him via sling to the wheelchair. It is a lot less stressful on his body than somebody trying to lift him. That saves his energy for PT which will start up again tomorrow. The goal is to get him to the point where he can withstand 3 hours of therapy a day (not all at the same time) so that he can move to rehab. If I would have to guess I would say Thursday may be his moving day. Now is when it gets really tough because it is all up to Paul. It is going to be painful and exhausting but you know Paul is determined. At times he gets a little frustrated and thinks his neck can't withstand the work but his doctor says it will be okay. I can't imagine how hard it must be to 1 - do the work and 2 - not be a little freaked out when you feel some weird pain. There is a lot of mind over matter that has to go on here which is easier said than done. If you can imagine the pain Paul has been feeling, literally for years, and then having some pain or tingling now and trying to convince yourself that it isn't going to lead to something else. But that's what he has to do. Easy for me to say.
If you are reading this blog, please leave a message for Paul. He loves seeing what people have to say. You all are his biggest cheerleaders and he appreciates hearing from you on the blog. It is still a little challenging for Paul to talk on the phone so don't be concerned if you don't hear from him or if he doesn't answer the phone. Recovery is the main goal right now. Leaving him a message here is the best thing right now. Hopefully when he gets into rehab he will be able to have some visitors but we'll have to see what his schedule is like.
Carole goes home tomorrow and I've just got to say what a tremendous help she has been. She has spent the night at the hospital; coordinated with the nurses; been Paul's constant advocate; talked him through many situations; been his constant companion; etc. To say Paul is blessed to have her in his life would be a gross understatement. It will easily take the five of us to try and fill her shoes. Paul has also had so many great nurses at the NIH - Tina, Robin, Victory and Nanette to name a few.
More later in the week.